Usher Network

Aims and objectives of the Usher Network

The Usher Network aims to share research and best practices across borders and organizations. The network is an ongoing group for discussing advancements in support for individuals with Usher syndrome. We are using the group as a platform to share information and provide innovative new working practices, and achieve this by:

• collecting, discussing, communicating and disseminating new research and developments in Usher syndrome (medical and psychosocial research, legal developments)
• supporting members’ requests in various countries
• ensuring that views and current best practice related to Usher syndrome is disseminated to DbI members and collected in the network
• communicating new developments in relevant magazines, journals, newsletters or at conferences etc.
• representing the interests of people with Usher syndrome at major conferences, events and in general society.
• working together with other professionals working with people with Usher, as well as supporting and working with family and friends of those with Usher.

We are currently looking for two new committee members to join us and work with us to take our
Usher Network to the next level. We welcome you to contact us if you would like to join.

Inquiries related to the network can be posed to: SHOW EMAIL