Multi-purpose libraries
General Information on Deafblindness (And Related Syndromes)
| About CHARGE Syndrome | https://www.chargesyndrome.org/about-charge/overview/ |
| Accesibility of websites from Deafblind Ontario Services | https://www.ontario.ca/page/how-make-websites-accessible |
| Anne Sullivan Library | https://annesullivanlib.org/ |
| Bloom Library | https://bloomlibrary.org/browse |
| CHARGE Syndrome Foundation Webinars | https://www.chargesyndrome.org/for-families/resources/webinars/ |
| Chetana Library | http://littlespark.in/chetana.html |
| DeafBlind Ontario Services | https://deafblindontario.com/our-services/resource-centre/ |
| Deafblind Virtual Resource Centre (DVRC), DeafBlind Ontario Services | Download file |
| Library of the Lega del filo d’oro (with publications in Italian and English) | https://biblioteca.legadelfilodoro.it/home/vetrina |
| Listing of Resources from the Perkins School for the Blind Research Library, Boston, Mass. USA related to siblings of deafblind Individuals | Download file |
| National Sensory Impairment Partnership | https://www.natsip.org.uk/ |
| Nordic Welfare Centre: Physical and Mental Health at People with Usher type 2 (English subtitles) | https://www.youtube.com/watch?time_continue=3&v=eYoRI6NW75k&feature=emb_logo |
| Nordic Welfare Centre: Theory of Mind and Alstroms Syndrome (English subtitles) | https://www.youtube.com/watch?time_continue=6&v=UIF8XZDu7JI&feature=emb_logo |
| Open Hands, Open Access (OHOA): Deaf-Blind Intervener Learning Modules | https://www.nationaldb.org/products/modules/ohoa/ |
| Perkins Library | https://perkins.klas.com/ |
| Perkins Publications | https://www.perkinselearning.org/publications |
| SENSE India publications | https://www.senseintindia.org/publications/ |
| Specialist resources, training and organisational contacts related to sensory impairment in UK | https://www.natsip.org.uk/slh-home/know/what-works-database |
| UN Convention on the Rights of Persons with Disabilities | Download file |
Resources in foreign languages
| Apsocecat (Associació Catalana pro Persones amb Sordceguesa) | https://www.apsocecat.org/publicacions/ |
| Article “Cognitive Assessment of Children Who Are Deafblind: Perspectives and Suggestions for Assessments” | link to download |
| Article “Cognitive Assessment of Children Who Are Deafblind: Perspectives and Suggestions for Assessments” in Spanish | link to download |
| Center for special materials on deafblindness. Denmark | https://www.matcen.dk/ |
| Checklist to identify people with Deafblindness in Spanish | https://www.deafblindinternational.org/for-our-spanish-speaking-friends-checklist-to-identify-people-with-deafblindness-now-is-spanish/ |
| Chetana Charitable Trust in English, Spanish and India local languages | https://bloomlibrary.org/browse |
| Community of practice in deafblindness in French & English | https://cdpsurdicecite.org/ |
| DLAN Deafblind association of Slovenia | http://www.gluhoslepi.si/en/literature/ |
| Education and Rehabilitation services in Italy | https://www.legadelfilodoro.it/cosa-facciamo/servizi-forniti/educazione-riabilitazione |
| Educational Resources in Danish | https://www.matcen.dk/ |
| Lectures on elderly and combined vision and hearing loss in Norwegian (English subtitles) | https://www.youtube.com/watch?list=PLBjRXGXUXsRvr_mB5HxJgQo0RXgOr8pZL |
| Library of the Lega del filo d’oro (with publications in Italian and English) | https://biblioteca.legadelfilodoro.it/home/vetrina |
| ONCE. Library on Visual Impairment (visual impairment, blindness and deafblindness). Spain | https://portal.once.es/bibliotecas/fondo-bibliografico-discapacidad-visual |
| Perkins International Latin America: “Physical education for people with visual disabilities and deafblindness” | http://tech.aph.org/Educacion-AP.zip |
| Research Overview Nationellt kunskapscenter för dövblindfragor | https://research.nkcdb.se/ |
| University Hospital of North Norway | https://www.dovblindhet.no/ |
Academic papers
| Accessibility Guidelines from Deafblind Ontario Services | https://deafblindontario.com/our-services/accessibility-guidelines/ |
| Anne Sullivan library | https://annesullivanlib.org/ |
| Children with multiple disabilities and/or deafblindness in Latin America and the Caribbean: Educational practices analysis through video-films | https://www.deafblindinternational.org/wp-content/uploads/2023/05/Full-Article-Video-analysis-through-films-ENG.pdf |
| Perkins library | https://perkins.klas.com/ |
| Self-management for dual sensory impaired older adults: an effective approach? Dr. Lieve Roets-Merken, PhD | https://repository.ubn.ru.nl/bitstream/handle/2066/177939/177939.pdf?sequence=1 |
Educational practices
| NatSIP: Brief Note on Accessing Sign Langauge in the Tactile Modality | https://www.natsip.org.uk/doc-library-login/natsip-briefing-documents-and-papers/tactile-signing/866-briefing-note-tactile-signing |
| Perkins eLearning on Paths To Literacy | https://www.perkinselearning.org/pathstoliteracy |
Country reports
| Associació Catalana pro Persones amb Sordceguesa. | https://www.apsocecat.org/who-are-we/memories/?lang=en |
| National center on deafblindness | https://www.nationaldb.org/info-center/national-child-count/ |
| Sense India | https://www.senseintindia.org/publicationAndResources.html |
| Sense Scotland | https://www.sensescotland.org.uk/resources/publications/ |
| Sense UK | https://www.sense.org.uk/get-support/centres-education-and-day-services/sense-college/policies-and-reports/ |
| World Federation of the Deafblind | https://wfdb.eu/wfdb-report-2022/ |
Resources&Guides for Deafblind Users
| Internet Navigation for Individuals with Low Vision or Blindness | https://www.nvisioncenters.com/internet-accessibility-guide |
Self-advocacy Manuals
The Deafblind Advocacy Group Canada wrote an easy to follow manual to serve as a self-advocacy resource for Canadians with deafblindness based on extensive research and personal stories and steps needed to accomplish self-advocacy goals to get equal access to services to live fulfilling lives.
We hope that this manual will support individuals who are deafblind in learning to be an effective self-advocate to remove barriers such as access to information, systemic, economic, political, educational, transportation, attitudinal, medical, and social services.
We also request you to share the link to this self-advocacy manual with your contacts, friends, family members so they can benefit from this excellent resource.