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What is New

Category: What is New

3rd International CHARGE Syndrome Awareness Day
CHARGE Network News What is New

3rd International CHARGE Syndrome Awareness Day

CHARGE is rare – but on August 8, it’s everywhere.Get ready for the 3rd International CHARGE Syndrome Awareness Day! This year’s theme is “CHARGE syndrome – how do you spell it?”Show the incredible variability of…

by Ilya Platonov
June 29, 2026
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Invitation to the 1st International Conference on Interpreting for Deafblind People
What is New

Invitation to the 1st International Conference on Interpreting for Deafblind People

Dear colleagues and friends,We are delighted to invite you to the 1st International Professional Conference on Interpreting for Deafblind People, taking place on 30 June 2026 at the House of the European Union in Ljubljana,…

by Ilya Platonov
June 29, 2026
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Joint Press Statement: Deafblind International and World Federation of the Deafblind Mark International Deafblindness Day
What is New

Joint Press Statement: Deafblind International and World Federation of the Deafblind Mark International Deafblindness Day

In commemoration of International Deafblindness Day on June 27, Deafblind International (DbI) and the World Federation of the Deafblind (WFDB) have issued a joint call to action urging global recognition of deafblindness as a distinct,…

by Ilya Platonov
June 24, 2026
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Deafblind Diversity
What is New

Deafblind Diversity

Understanding Deafblindness as a Spectrum: A New Resolution in Deafblind Awareness MonthThe Board of Deafblind International DbI and the Executive Council of the World Federation of the Deafblind WFDBNoting that deafblindness is a condition of…

by Mirko Baur
June 19, 2026
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Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording
CHARGE Network News What is New

Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording

Welcome to the webinar recording “Adult Medical Issues in CHARGE Syndrome: Insights, Stories and Developing a Comprehensive Care Checklist.”In this session, Claudia Junghans—First President of the German CHARGE Group and mother of a 21-year-old son…

by Ilya Platonov
May 1, 2026
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Webinar Recording Now Available: Life Beyond School
CHARGE Network News What is New

Webinar Recording Now Available: Life Beyond School

The recording of our recent webinar “Life Beyond School: When Passions Turn into Meaningful Employment” is now available to watch.In this insightful and deeply personal presentation, Claudia Junghans, 1st President of the German CHARGE Group…

by Ilya Platonov
May 1, 2026
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