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CHARGE Network News

DbI CHARGE Network Online Case Discussions

The DbI CHARGE Network is planning a next session for online case discussion for members of the CHARGE Network.During these sessions, any member could share a CHARGE-related case to discuss. The topic can be for…

by Ilya Platonov
September 4, 2026
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CHARGE Syndrome Awareness Day 2026
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CHARGE Syndrome Awareness Day 2026

Today, on August 8, we celebrate CHARGE Syndrome Awareness Day!We are spelling the letters of CHARGE around the world to raise awareness of CHARGE syndrome. Please join us on this special day! And feel welcome…

by Ilya Platonov
August 8, 2026
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3rd International CHARGE Syndrome Awareness Day
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3rd International CHARGE Syndrome Awareness Day

CHARGE is rare – but on August 8, it’s everywhere.Get ready for the 3rd International CHARGE Syndrome Awareness Day! This year’s theme is “CHARGE syndrome – how do you spell it?”Show the incredible variability of…

by Ilya Platonov
June 29, 2026
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Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording
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Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording

Welcome to the webinar recording “Adult Medical Issues in CHARGE Syndrome: Insights, Stories and Developing a Comprehensive Care Checklist.”In this session, Claudia Junghans—First President of the German CHARGE Group and mother of a 21-year-old son…

by Ilya Platonov
May 1, 2026
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Webinar Recording Now Available: Life Beyond School
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Webinar Recording Now Available: Life Beyond School

The recording of our recent webinar “Life Beyond School: When Passions Turn into Meaningful Employment” is now available to watch.In this insightful and deeply personal presentation, Claudia Junghans, 1st President of the German CHARGE Group…

by Ilya Platonov
May 1, 2026
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DbI CHARGE Network Invites its Members to the Webinar on Friday, April 17
CHARGE Network News What is New

DbI CHARGE Network Invites its Members to the Webinar on Friday, April 17

DbI CHARGE Network invites its members to the following webinar on Friday, 17 April, 2026. We are very excited to present Dr. Kim Blake and Claudia Junghans!Adult Medical Issues in CHARGE SyndromeInsights, Stories and Developing…

by Ilya Platonov
March 20, 2026
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