Today, on August 8, we celebrate CHARGE Syndrome Awareness Day!We are spelling the letters of CHARGE around the world to raise awareness of CHARGE syndrome. Please join us on this special day! And feel welcome…
Category: CHARGE Network News
3rd International CHARGE Syndrome Awareness Day
CHARGE is rare – but on August 8, it’s everywhere.Get ready for the 3rd International CHARGE Syndrome Awareness Day! This year’s theme is “CHARGE syndrome – how do you spell it?”Show the incredible variability of…
Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording
Welcome to the webinar recording “Adult Medical Issues in CHARGE Syndrome: Insights, Stories and Developing a Comprehensive Care Checklist.”In this session, Claudia Junghans—First President of the German CHARGE Group and mother of a 21-year-old son…
Webinar Recording Now Available: Life Beyond School
The recording of our recent webinar “Life Beyond School: When Passions Turn into Meaningful Employment” is now available to watch.In this insightful and deeply personal presentation, Claudia Junghans, 1st President of the German CHARGE Group…
DbI CHARGE Network Invites its Members to the Webinar on Friday, April 17
DbI CHARGE Network invites its members to the following webinar on Friday, 17 April, 2026. We are very excited to present Dr. Kim Blake and Claudia Junghans!Adult Medical Issues in CHARGE SyndromeInsights, Stories and Developing…
DBI CHARGE Network invites its members to the following webinar on Wednesday, March 4, 2026
DBI CHARGE Network invites its members to the following webinar on Wednesday,March 4, 2026. We are very excited to present Claudia Junghans!Life beyond schoolWhen passions/obsessions or hobbies turn into meaningful employmentsClaudia Junghans, 1st president of…