Dr. Kim Blake and Claudia Junghans will share updates on their research on medical issues impacting adults with CHARGE Syndrome. This interactive session will include updates from their research, and questions and answers.In case you…
Category: CHARGE Network News
DbI CHARGE Network Online Case Discussions
The DbI CHARGE Network is planning a next session for online case discussion for members of the CHARGE Network.During these sessions, any member could share a CHARGE-related case to discuss. The topic can be for…
CHARGE Syndrome Awareness Day 2026
Today, on August 8, we celebrate CHARGE Syndrome Awareness Day!We are spelling the letters of CHARGE around the world to raise awareness of CHARGE syndrome. Please join us on this special day! And feel welcome…
3rd International CHARGE Syndrome Awareness Day
CHARGE is rare – but on August 8, it’s everywhere.Get ready for the 3rd International CHARGE Syndrome Awareness Day! This year’s theme is “CHARGE syndrome – how do you spell it?”Show the incredible variability of…
Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording
Welcome to the webinar recording “Adult Medical Issues in CHARGE Syndrome: Insights, Stories and Developing a Comprehensive Care Checklist.”In this session, Claudia Junghans—First President of the German CHARGE Group and mother of a 21-year-old son…
Webinar Recording Now Available: Life Beyond School
The recording of our recent webinar “Life Beyond School: When Passions Turn into Meaningful Employment” is now available to watch.In this insightful and deeply personal presentation, Claudia Junghans, 1st President of the German CHARGE Group…