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Category: CHARGE Network News

Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording
CHARGE Network News What is New

Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording

Welcome to the webinar recording “Adult Medical Issues in CHARGE Syndrome: Insights, Stories and Developing a Comprehensive Care Checklist.”In this session, Claudia Junghans—First President of the German CHARGE Group and mother of a 21-year-old son…

by Ilya Platonov
May 1, 2026
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Webinar Recording Now Available: Life Beyond School
CHARGE Network News What is New

Webinar Recording Now Available: Life Beyond School

The recording of our recent webinar “Life Beyond School: When Passions Turn into Meaningful Employment” is now available to watch.In this insightful and deeply personal presentation, Claudia Junghans, 1st President of the German CHARGE Group…

by Ilya Platonov
May 1, 2026
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DbI CHARGE Network Invites its Members to the Webinar on Friday, April 17
CHARGE Network News What is New

DbI CHARGE Network Invites its Members to the Webinar on Friday, April 17

DbI CHARGE Network invites its members to the following webinar on Friday, 17 April, 2026. We are very excited to present Dr. Kim Blake and Claudia Junghans!Adult Medical Issues in CHARGE SyndromeInsights, Stories and Developing…

by Ilya Platonov
March 20, 2026
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CHARGE Network News

DBI CHARGE Network invites its members to the following webinar on Wednesday, March 4, 2026

DBI CHARGE Network invites its members to the following webinar on Wednesday,March 4, 2026. We are very excited to present Claudia Junghans!Life beyond schoolWhen passions/obsessions or hobbies turn into meaningful employmentsClaudia Junghans, 1st president of…

by Ilya Platonov
February 6, 2026
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Today We Celebrate CHARGE Syndrome Awareness Day
CHARGE Network News What is New

Today We Celebrate CHARGE Syndrome Awareness Day

Today, on August 8th, we celebrate CHARGE Syndrome Awareness Day. We’re joining hands around the world to raise awareness of CHARGE syndrome. The Deafblind International CHARGE Network is a global network of people with CHARGE…

by Ilya Platonov
August 8, 2025
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CHARGE Network News

The CHARGE Network hosted two very interesting webinars recently

Dr. Jerry Petroff, Ph.D, Professor at The College of New Jersey presented the webinar ‘What about the dads’. In this webinar, he shared his valuable research on fathers’ involvement in the care, development and education…

by Ilya Platonov
June 5, 2025
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