Welcome to the webinar recording “Adult Medical Issues in CHARGE Syndrome: Insights, Stories and Developing a Comprehensive Care Checklist.”
In this session, Claudia Junghans—First President of the German CHARGE Group and mother of a 21-year-old son with CHARGE—and Dr. Kim Blake, Professor of Pediatrics at Dalhousie University, share their expertise on the evolving medical needs of adults with CHARGE syndrome.
As life expectancy increases, new health challenges emerge, including cardiovascular issues such as arrhythmias and POTS, bone health concerns, hormone replacement, exercise, and mental health. Through clinical insights and real-life stories, this webinar highlights the importance of proactive, coordinated care and contributes to developing an adult-focused CHARGE medical checklist.
This webinar recording is available in three languages and includes American Sign Language (ASL) interpretation.
We hope this session offers valuable knowledge and practical guidance for supporting adults with CHARGE syndrome.