Resources

General Information on Deafblindness (And Related Syndromes)

About CHARGE Syndromehttps://www.chargesyndrome.org/about-charge/overview/
Accesibility of websites from Deafblind Ontario Serviceshttps://www.ontario.ca/page/how-make-websites-accessible
Anne Sullivan Libraryhttps://annesullivanlib.org/
Bloom Libraryhttps://bloomlibrary.org/browse
CHARGE Syndrome Foundation Webinarshttps://www.chargesyndrome.org/for-families/resources/webinars/
Chetana Libraryhttp://littlespark.in/chetana.html
DeafBlind Ontario Serviceshttps://deafblindontario.com/our-services/resource-centre/
Deafblind Virtual Resource Centre (DVRC), DeafBlind Ontario ServicesDownload file
Library of the Lega del filo d’oro (with publications in Italian and English)https://biblioteca.legadelfilodoro.it/home/vetrina
Listing of Resources from the Perkins School for the Blind Research Library, Boston, Mass. USA related to siblings of deafblind IndividualsDownload file
National Sensory Impairment Partnershiphttps://www.natsip.org.uk/
Nordic Welfare Centre: Physical and Mental Health at People with Usher type 2 (English subtitles)https://www.youtube.com/watch?time_continue=3&v=eYoRI6NW75k&feature=emb_logo
Nordic Welfare Centre: Theory of Mind and Alstroms Syndrome (English subtitles)https://www.youtube.com/watch?time_continue=6&v=UIF8XZDu7JI&feature=emb_logo
Open Hands, Open Access (OHOA): Deaf-Blind Intervener Learning Moduleshttps://www.nationaldb.org/products/modules/ohoa/
Perkins Libraryhttps://perkins.klas.com/
Perkins Publicationshttps://www.perkinselearning.org/publications
SENSE India publicationshttps://www.senseintindia.org/publications/
Specialist resources, training and organisational contacts related to sensory impairment in UKhttps://www.natsip.org.uk/slh-home/know/what-works-database
UN Convention on the Rights of Persons with DisabilitiesDownload file

Resources in foreign languages

Apsocecat (Associació Catalana pro Persones amb Sordceguesa)https://www.apsocecat.org/publicacions/
Article “Cognitive Assessment of Children Who Are Deafblind: Perspectives and Suggestions for Assessments”link to download
Article “Cognitive Assessment of Children Who Are Deafblind: Perspectives and Suggestions for Assessments” in Spanishlink to download
Center for special materials on deafblindness. Denmarkhttps://www.matcen.dk/
Checklist to identify people with Deafblindness in Spanishhttps://www.deafblindinternational.org/for-our-spanish-speaking-friends-checklist-to-identify-people-with-deafblindness-now-is-spanish/
Chetana Charitable Trust in English, Spanish and India local languageshttps://bloomlibrary.org/browse
Community of practice in deafblindness in French & Englishhttps://cdpsurdicecite.org/
DLAN Deafblind association of Sloveniahttp://www.gluhoslepi.si/en/literature/
Education and Rehabilitation services in Italyhttps://www.legadelfilodoro.it/cosa-facciamo/servizi-forniti/educazione-riabilitazione
Educational Resources in Danishhttps://www.matcen.dk/
Lectures on elderly and combined vision and hearing loss in Norwegian (English subtitles)https://www.youtube.com/watch?list=PLBjRXGXUXsRvr_mB5HxJgQo0RXgOr8pZL
Library of the Lega del filo d’oro (with publications in Italian and English)https://biblioteca.legadelfilodoro.it/home/vetrina
ONCE. Library on Visual Impairment (visual impairment, blindness and deafblindness). Spainhttps://portal.once.es/bibliotecas/fondo-bibliografico-discapacidad-visual
Perkins International Latin America: “Physical education for people with visual disabilities and deafblindness”http://tech.aph.org/Educacion-AP.zip
Research Overview Nationellt kunskapscenter för dövblindfragorhttps://research.nkcdb.se/
University Hospital of North Norwayhttps://www.dovblindhet.no/
Accessibility Guidelines from Deafblind Ontario Serviceshttps://deafblindontario.com/our-services/accessibility-guidelines/
Anne Sullivan libraryhttps://annesullivanlib.org/
Children with multiple disabilities and/or deafblindness in Latin America and
the Caribbean: Educational practices analysis through video-films		https://www.deafblindinternational.org/wp-content/uploads/2023/05/Full-Article-Video-analysis-through-films-ENG.pdf
Perkins libraryhttps://perkins.klas.com/
Self-management for dual sensory impaired older adults: an effective approach? Dr. Lieve Roets-Merken, PhDhttps://repository.ubn.ru.nl/bitstream/handle/2066/177939/177939.pdf?sequence=1
NatSIP: Brief Note on Accessing Sign Langauge in the Tactile Modalityhttps://www.natsip.org.uk/doc-library-login/natsip-briefing-documents-and-papers/tactile-signing/866-briefing-note-tactile-signing
Perkins eLearning on Paths To Literacyhttps://www.perkinselearning.org/pathstoliteracy
Internet Navigation for Individuals with Low Vision or Blindnesshttps://www.nvisioncenters.com/internet-accessibility-guide

Highlighting the Experiences of Mothers with Deafblindness

The project aims to reduce discrimination and attitudinal bias among healthcare professionals—including doctors, nurses, psychologists, and midwives—when providing care to women with disabilities throughout all stages of motherhood.

The second edition of the ASSIST newsletter, published today (see below), shines a spotlight on one of the most overlooked groups in both disability and maternal health discussions: mothers with deafblindness. It features research findings conducted by WFDB in collaboration with our national member in Croatia, DODIR.

This is groundbreaking work, as there is currently very little data or research available on the experiences of mothers with deafblindness. The newsletter is available in PDF, Word, and plain text formats and in English, Spanish, Italian, Greek, and French. You can access it here:
https://wfdb.eu/2025/08/01/highlighting-the-experiences-of-mothers-with-deafblindness/