CHARGE Syndrome Awareness Day – 8 August 2025.
This year’s theme for CHARGE Syndrome Awareness Day is Stronger Together: Connecting CHARGE Around the World. On August 8, 2025, we’re uniting globally—both symbolically and literally—to raise awareness of CHARGE syndrome, a rare and often misunderstood condition.
We invite individuals, families, organisations, and support groups within the CHARGE community to join us by sharing images and videos that celebrate connection. Whether it’s a group hug, a human chain, or a virtual high-five—every gesture counts. Together, we’ll show the world that no one faces CHARGE syndrome alone.
Download the leaflet: Brasil, Deutsch, Nederlands.
Let’s connect, celebrate, and raise our voices—because no one faces CHARGE syndrome alone.