Beyond Methodology: Field Lessons from Deafblind Research in Zambia by Stephen Kangwa Chilobwa shares practical reflections from fieldwork, highlighting community-led research, ethical practice, translation, flexibility, and the importance of listening to lived experience. Drawing on lessons…
Month: May 2026
Now Available: “Adult Medical Issues in CHARGE Syndrome” Webinar Recording
Welcome to the webinar recording “Adult Medical Issues in CHARGE Syndrome: Insights, Stories and Developing a Comprehensive Care Checklist.”In this session, Claudia Junghans—First President of the German CHARGE Group and mother of a 21-year-old son…
Webinar Recording Now Available: Life Beyond School
The recording of our recent webinar “Life Beyond School: When Passions Turn into Meaningful Employment” is now available to watch.In this insightful and deeply personal presentation, Claudia Junghans, 1st President of the German CHARGE Group…
Call for Papers: Clinical Forum on Communication and Cerebral Visual Impairment (CVI)
Children with vision differences—and particularly those with Cerebral Visual Impairment (CVI)—and their families frequently interact with speech-language pathology services during early intervention and throughout their school years. Despite this, many speech-language pathologists receive limited formal…




